Chloe was born premature with a congenital heart defect called ‘hypoplastic left heart syndrome.’ The left side of her heart did not develop properly during the first eight weeks of pregnancy and without surgical intervention Chloe would not have survived. Immediately after birth, Chloe was transported...
Twins Tristan and Carson made their way into this world 10 weeks premature at Magee-Womens Hospital, three hours away from home. Carson weighed only 2 lbs. 8oz. and Tristan was a little over 3lbs. They were doing great, then after three weeks the unthinkable happened...
Gideon was born full term and passed his newborn screening with flying colors. At seven weeks, however, his family began to notice weakness in his body movements and functions. At one point, he turned blue in his car seat from not being able to hold...
My son Caleb’s birth was a bit of a roller coaster – he came out very quickly. In addition, I had a postpartum hemorrhage after he was born. The next morning, he was diagnosed with tachypnea, which is fast breathing due to fluid in his lungs,...
My son was diagnosed with a congenital pulmonary airway malfunction (CPAM) at 20 weeks. After a discussion with the doctor, a genetic counselor and listening to the wide-ranging possibilities for the remainder of the pregnancy, I was numb. At the same time, I was prepared...
