Stories

Chloe was born premature with a congenital heart defect called ‘hypoplastic left heart syndrome.’ The left side of her heart did not develop properly during the first eight weeks of pregnancy and without surgical intervention Chloe would not have survived. Immediately after birth, Chloe was transported...

My son was diagnosed with a congenital pulmonary airway malfunction (CPAM) at 20 weeks. After a discussion with the doctor, a genetic counselor and listening to the wide-ranging possibilities for the remainder of the pregnancy, I was numb. At the same time, I was prepared...